The delta wave is back...

We had Sweet Pea’s appointment at the Mayo today to talk next steps. The delta wave is back on her EKG so since it went dormant and reappeared the specialist said it's very unlikely she will outgrow this on her own, he made a special note to say sometimes they surprise us. So I'm ready to move on from the dream that she will outgrow it and on to the living with it until she can have an ablation. He said by the looks of her EKG it also appears her extra pathway is on the left side of heart which solidifies the fact that it's way too dangerous to ablate before her 4th birthday. He said because of the likely location of the extra pathway they have to insert the catheter between the left and right side of the heart, there's a greater risk for piercing one of the lobes of the heart so they need to make sure she's as big and strong as possible for the procedure. They took blood today as usual (it was not an easy stick this time either so that sucked!) and based on the level in her blood the specialist is going to calculate a new mg/kilo ration to base her dose changes on. She was 17lbs 15oz and 26 3/4 inches long today, we'll see what these numbers are at the pediatrician's office on Thursday, she has her 9 month check-up then.

Another trip to the ER

Well unfortunately we ended in the ER with Sweet Pea on Monday night, she had another episode and needed to be converted. So I guess the WPW went concealed instead of resolving. We have a check up at the Mayo on the 19th and we'll talk new game plan for her. For now we up'd her meds to match her weight again and hopefully that'll keep the episodes at bay. It's been so long since she had one that I forgot how stressful it can be! The hard part is that she doesn't really tell us she's in SVT because she was still smiling and Little Man was making her laugh all the way to the hospital. The only sign was that was kind of clingy and didn't eat much on Monday. So much for her telling us when she's in it when she gets older! I tell ya, she's a trooper that one! That's it for now, will write more later!